<![CDATA[Odisha Development Forum - An Initiative from The Odisha Society of the Americas - Missing Central Institutes/Organizations]]>

<![CDATA[Odisha Development Forum - An Initiative from The Odisha Society of the Americas - Missing Central Institutes/Organizations]]> / Tue, 14 Apr 2026 05:21:30 +0000 MyBB <![CDATA[Centres of Excellence (CoEs) for Rare Diseases]]> /thread-802.html Fri, 17 Jan 2025 15:34:48 +0000 Popeye]]> /thread-802.html [font="Helvetica Neue", Helvetica, Arial, sans-serif][font="Times New Roman", Times, serif]Currently, 63 rare diseases are included under National Policy for Rare Diseases on recommendation of Central Technical Committee for Rare Diseases (CTCRD). The list of rare diseases is at Annexure II. Financial support of up to Rs. 50 lakhs per patient is provided for the treatment at the notified Centres of Excellence (CoEs) for Rare Diseases.[/font][/font]

[font="Helvetica Neue", Helvetica, Arial, sans-serif][font="Times New Roman", Times, serif][font="Helvetica Neue", Helvetica, Arial, sans-serif][font="Times New Roman", Times, serif]● 12 Centres of Excellence (CoEs) have been identified so far, which are premier Government tertiary hospitals with facilities for diagnosis, prevention and treatment of rare diseases.[/font][/font][/font][/font]

[font="Helvetica Neue", Helvetica, Arial, sans-serif][font="Times New Roman", Times, serif][font="Helvetica Neue", Helvetica, Arial, sans-serif][font="Times New Roman", Times, serif]List of Centres of Excellence (CoEs)[/font][/font]
[font="Helvetica Neue", Helvetica, Arial, sans-serif][font="Times New Roman", Times, serif]1. All India Institute of Medical Sciences, New Delhi[/font][/font][/font][/font]

[font="Helvetica Neue", Helvetica, Arial, sans-serif][font="Times New Roman", Times, serif]2. Maulana Azad Medical College, New Delhi[/font][/font]

[font="Helvetica Neue", Helvetica, Arial, sans-serif][font="Times New Roman", Times, serif]3. Sanjay Gandhi Post Graduate Institute of Medical Sciences, Lucknow[/font][/font]

[font="Helvetica Neue", Helvetica, Arial, sans-serif][font="Times New Roman", Times, serif]4. Post Graduate Institute of Medical Education and Research, Chandigarh[/font][/font]

[font="Helvetica Neue", Helvetica, Arial, sans-serif][font="Times New Roman", Times, serif]5. Centre for DNA Fingerprinting & Diagnostics with Nizam’s Institute of Medical Sciences, Hyderabad[/font][/font]

[font="Helvetica Neue", Helvetica, Arial, sans-serif][font="Times New Roman", Times, serif]6. King Edward Medical Hospital, Mumbai[/font][/font]

[font="Helvetica Neue", Helvetica, Arial, sans-serif][font="Times New Roman", Times, serif]7. Institute of Post-Graduate Medical Education and Research, Kolkata[/font][/font]

[font="Helvetica Neue", Helvetica, Arial, sans-serif][font="Times New Roman", Times, serif]8. Center for Human Genetics(CHG) with Indira Gandhi Hospital, Bengaluru[/font][/font]

[font="Helvetica Neue", Helvetica, Arial, sans-serif][font="Times New Roman", Times, serif]9. Institute of Child Health and Hospital for Children (ICH & HC), Chennai[/font][/font]

[font="Helvetica Neue", Helvetica, Arial, sans-serif][font="Times New Roman", Times, serif]10. All India Institute of Medical Sciences (AIIMS), Jodhpur[/font][/font]

[font="Helvetica Neue", Helvetica, Arial, sans-serif][font="Times New Roman", Times, serif]11. Sree Avittam Thirunal Hospital (SAT), Government Medical College, Thiruvananthapuram[/font][/font]

[font="Helvetica Neue", Helvetica, Arial, sans-serif][font="Times New Roman", Times, serif][font="Helvetica Neue", Helvetica, Arial, sans-serif][font="Times New Roman", Times, serif]12. All India Institute of Medical Sciences, Bhopal[/font][/font]

Sadly no institution has been selected from state of Odisha, even AIIMS Bhubneswar also is not in list, where aiims jodhpur, aiims bhopal selected, where all 3 aiims established in same times. Where state funded ipgmer kalakutta is in list, In NIRF AIIMS Bhubneswar always better ranked than ipgmer kalakutta, how is this possible ?[/font][/font]

[font="Helvetica Neue", Helvetica, Arial, sans-serif][font="Times New Roman", Times, serif]I want to remind respected fellows, how Higher Educational discrimination happen with Our state Odisha. In 2005 how bongs hijacked our True National Institute of Science !!
[/font][/font]]]> [font="Helvetica Neue", Helvetica, Arial, sans-serif][font="Times New Roman", Times, serif]Currently, 63 rare diseases are included under National Policy for Rare Diseases on recommendation of Central Technical Committee for Rare Diseases (CTCRD). The list of rare diseases is at Annexure II. Financial support of up to Rs. 50 lakhs per patient is provided for the treatment at the notified Centres of Excellence (CoEs) for Rare Diseases.[/font][/font]

[font="Helvetica Neue", Helvetica, Arial, sans-serif][font="Times New Roman", Times, serif][font="Helvetica Neue", Helvetica, Arial, sans-serif][font="Times New Roman", Times, serif]● 12 Centres of Excellence (CoEs) have been identified so far, which are premier Government tertiary hospitals with facilities for diagnosis, prevention and treatment of rare diseases.[/font][/font][/font][/font]

[font="Helvetica Neue", Helvetica, Arial, sans-serif][font="Times New Roman", Times, serif][font="Helvetica Neue", Helvetica, Arial, sans-serif][font="Times New Roman", Times, serif]List of Centres of Excellence (CoEs)[/font][/font]
[font="Helvetica Neue", Helvetica, Arial, sans-serif][font="Times New Roman", Times, serif]1. All India Institute of Medical Sciences, New Delhi[/font][/font][/font][/font]